We know what we don't know? #uronenamillion

So we know Judy has a tumor on her clivus but we have no idea what a clivus is or where it is or even is located.   Honestly, I don't know if the doctor really even knew much more about it either.  I don't mean about the tumor in general, but Looking back, I am sure he was not ready for what he found that either. That would explain the lack of information he was able to give use on the subject. You would figure after learning something like having a tumor they would give you a ton of information on the subject to take home. But nope.

I do know the doctor said he just got off the phone with the person who read the results to him so that was the reason we had waited for such a long time in the waiting room prior to seeing the doctor.

Sometimes people say that giving no information is sometimes the best thing for people. You have heard the saying what they don't know won't hurt them. That may have been the old way of thinking, But in today's world it is not the case. With Google, the world wide web, and today's technology at our fingertips, having little or no information can be the worst thing for some people.

So at this point all we have been told is Judy has a tumor and it was located on her clivus.  We also have learned that this tumor will never be able to be completely removed and she will need some form of radiation treatment.
So we were just sent home to wait for an appointment with a neurologist. This was no different then handing us a stick of dynamite, with a short fuse.   The fuse being time and the internet.

On the way home the first thing Judy did was to look up to find out exactly what and where the clivus was and what kinds of tumors grow on the clivus.  So and so forth.
Knowing what a clivus was step one. Then our mind and the internet got away from us.

The Clivus, the bone located at the base of the skull so we now know where the tumor is located. That narrows down things quite a bit. But even with this information there still were number of different types of things that it could be.  How big was it? Where it was located? How would it be treated? These were only some of the questions we had. And trust me we a million.  It seemed like with every answer we found we would have ten more.  The information we found led us to even more questions we needed answers to before our appointment with the neurologist.

We never felt more lost. We never felt so alone.  We did not know where to go, what to do, who to talk to, all that we knew is that things were bad, very bad.  Follow our story follow our journey.  #uronenamillion